THE FACES OF GUILLAIN BARRE 2018
May is quickly approaching and with it is our chance to spread awareness about GBS. May is Guillain Barre syndrome awareness month. In 2016 I created a series on my blog called "The Faces of Guillain Barre". I was blessed enough to have enough support to spot light one GBS story a day. In 2017 it grew to feature sometimes 2 fighters a day. In total there is over 70 stories under the "The Faces of Guillain Barré" tab.
I had so many well wishes and thank you for featuring this series. I'm excited to receive more stories to be able to make this happen again this May. I need at least 30 testimonials but would love to be able to share more. I know we are 4 months out but I wanted to give anyone that is interested a head start. I know life can get in the way. I would absolutely love to feature 60 people this year.
If you have sent me your story before and I havent published it, please shoot me another email. I'm still happy to post it but sometimes life happens and I need a reminder.
Any story is welcomed. It can be written by the fighter their self or a loved one. Im hoping to have a well rounded line up. Here are some topics I would love to include;
Newly Diagnosed
🐢5 years out
🐢10 years out
🐢20 years out
🐢Permanently in a wheelchair
🐢Kids before or after GBS
🐢Stem Cell transplant
🐢Memory loss
🐢Fellow bloggers
🐢Authors
🐢GBS triggered by- Flu shot, Pregnancy, Surgery, Zika Virus, ect.
🐢Same family
🐢Relapsed
🐢CIDP
🐢Locked in Syndrome
🐢Medical Cannabis
🐢Essential Oil users
🐢Men
🐢Teenagers
🐢Future health problems- other auto immune disease or cancer, ect
🐢Prople with a Service animal
🐢Other Countries besides the U.S.
🐢Athletes
🐢Feeding Tubes
🐢Ventilator
🐢Extended IVIG
🐢Misdiagnosed
🐢Hyperbaric chamber
🐢Miller Fisher
🐢AMAN
🐢AMSAN
🐢Chemo
🐢Surgery for foot drop
All I ask is a summary of your GBS journey, treatments used, date diagnosed, what triggered your GBS and where you are from. I will need at least one picture since this series is called "The 'faces' of Guillain Barré" the more pictures the better. A before, during and current picture would be great. If you are using Word or something similar try to keep it under 3 pages 😄
We are so blessed to be apart of great community. Sharing my story and writing on my blog has been unexpectedly therapeutic. It has led me to some priceless friendships.
A special thank you to all of you who participated the last two years. I would love an update and to repost your stories!
Please email stories by April 7th.
justinesgbsjourney@gmail.com
To help me and my organization, only stories emailed to the above address will be accepted.
