Everyday this is the first thing that I see in the morning and last thing I see at night.
“Get Well Soon”
Today marks two years. Two years into our new normal. When time dragged by so slow you didn’t know what day it was. In the past two years I have learned more patience than ever. I learned how loved I was and how precious life and loved ones are. But in these 2 years, nothing has came to me “soon”.
I am truly blessed. To have this life, however how difficult and unfair it may be. Life may have knocked me down but I’m literally and figuratively “Back on my feet.” 3 weeks ago I was officially cleared to drive. Being back behind the wheel feels so natural and right.
Right after I cas cleared to drive
For 2 weeks now I have been walking short distances without the help of my walking sticks. If I’m out of the house I’ll still keep them in my hands, just in case. I don’t mind falling- it’s part of the process. But every time I have fell it’s been in front of someone. I’m always ok but it makes me feel like an ass because everybody freaks out lol.
My happy place while looking for Christmas trees
I’m now to the point that I only use a wheelchair when I’m out and about. My beloved power chair, the “Hot Mess Express” broke over the weekend. It was time to part ways with it but it sure did make cooking a lot easier and safer…. Maybe now Bryan will fix all the damage that I caused with it. Every door frame in our home is messed up and the doors have holes punched into them from my poor chair… I think it’s safe to say that everyone but Hagen and I is happy to see it go.
I’ve been back in Physical Therapy for 2 months now. I love being back in a routine. I feel so much better these days. The days when I’m in excruciating pain and fatigue are few and far between. Knock on wood- I haven’t suffered from chronic pain since August. I’m happy I finally found a lifestyle that works for me.
I feel blessed to be able to live this “boring” life with Bryan and our animals. To see my niece’s ad nephew’s grow. To be present when my friends and cousin got married. I’m lucky to have been able to witness these moments. Also to just make everyday memories with the ones I love the most. I look forward to what life has in store for us all. Fingers crossed for only good karma to come our way.
I have learned so much since getting Guillain Barre Syndrome. I’ve said it before- “GBS has taken a lot from me… but it has given me so much more.” I appreciate the little things that life has to offer. I talk to strangers all the time. Which drives Bryan and Whitney crazy. They have both asked when I’m going to stop being so nice to everyone… The answer- hopefully never. You never know the battles a person is going through. A simple “Hi” or a light conversion can make someone’s day.
Im now back to doing everything for myself. Well besides curling or straightening my hair… Id like to avoid a burnt face. As always- I love to cook and bake. That’s how I got a lot of my dexterity back. My newest hobby is creating items with essential oils. I tried my luck at making Chapstick last week and loved it! I’m obsessed. It’s so silky smooth. It feels so right to be back to creating things. Like my life is truly getting back on track.
Thank you all for following along with my Guillain Barre Journey. All of the positive words and even when a loved one tells me what I don’t want to hear, but needs to be said- thank you. They truly made a difference. To all of my GBS friends- you are all amazing and resilient. Don’t give up no matter how slow your recovery is. Most importantly- try not to compare your recovery to someone else’s. Every case is so different. Thank you all for never forget about me and truly caring about my recovery.
There is a reason why the turtle is the symbol of GBS. Slow and Steady.
